2ND MULTI-STAKEHOLDER MEETING – ENSURING PATIENT CENTRICITY IN OSTEOGENESIS

2ND MULTI-STAKEHOLDER MEETING – ENSURING PATIENT CENTRICITY IN OSTEOGENESIS

REMEDi4ALL is hosting our 2nd Multi-stakeholder Meeting (MS) – Ensuring patient centricity in Osteogenesis Imperfecta (OI) research.

By REMEDi4ALL

Date and time

Thursday, June 13 · 8:30am - 5:40pm CEST

Location

Via del Pilastro, 2

2 Via del Pilastro 40127 Bologna Italy

About this event

  • 9 hours 10 minutes

Join the MSM

REMEDi4ALL invites all stakeholders in the OI research community to join us for a day of learning, discussion, and inspiration.

We welcome clinicians, academics, patients and patient representatives, pharmaceutical companies, regulators, payers, health economists and all interested in OI and Rare Bone Diseases research. Together, we will discuss and develop patient centric approaches to research and medicines development for OI.


Our MSM will:

  • Share information and advance learning, in a pre-competitive and cooperative setting
  • Develop constructive dialogue between all stakeholders
  • Facilitate collaboration and knowledge exchange
  • Identify current hurdles and propose solutions to ensure patient centricity in OI research
  • Publish and disseminate the meeting outcomes to a broader community


Learn more and see the full agenda here.


Organisers

Organised within the REMEDi4ALL project in collaboration with EURORDIS – Rare Disease Europe, Beacon for Rare Diseases, Associazione Italiana Osteogenesi Imperfetta – AS.IT.O.I., Osteogenesis Imperfecta Federation Europe – OIFE, European Reference Network on rare bone diseases – ERN BOND.


Tickets

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